Bioethics And Palliative Care Publications
The listings below highlight research and contributions by UW Pediatrics faculty. These listings are not intended as a citation but rather a call-out of UW Pediatrics contributions. For official authorship please click the publication link provided.
August 2024
- Esophageal Bronchus-the Hidden Link. A Case Report (PMID: 39212333). A A Pract.
UW Peds contributing authors: Fiona M Patrao , Amanda L Valdez,, Siri Kanmanthreddy,, Katherine R Gentry,, Michael J Collins Bioethics and Palliative Care - Climate change is drying out canopy plants-that could mean less water for the entire rainforest. (PMID: 39167599). Proc Natl Acad Sci USA.
UW Peds contributing authors: Amy McDermott Bioethics and Palliative Care - "I'm completely off base here on what this child is capable of": A qualitative analysis of how medical ableism manifests in PICU clinicians' care of children with severe neurological impairment (PMID: 39191572). Disabil Health J..
UW Peds contributing authors: Ellie Oslin, Roberto E Montenegro, Stephanie A Kraft , Alisa Van Cleave , Jori Bogetz Bioethics and Palliative Care - Staffing crisis capacity: a different approach to healthcare resource allocation for a different type of scarce resource (PMID: 35777960). J Med Ethics.
UW Peds contributing authors: Catherine R Butler , Douglas S Diekema Bioethics and Palliative Care - Staffing crisis capacity: a different approach to healthcare resource allocation for a different type of scarce resource (PMID: 35777960). Journal of Medical Ethics.
UW Peds contributing authors: Douglas S Diekema Bioethics and Palliative Care - Parent attitudes towards predictive testing for autism in the first year of life (PMID: 39154179). Journal of Neurodevelopmental Disorders.
UW Peds contributing authors: Benjamin Wilfond, Stephen R Dager, Annette M Estes, Katherine E MacDuffie Bioethics and Palliative Care - Parent attitudes towards predictive testing for autism in the first year of life (PMID: 39154179). J Neurodev Disord . .
UW Peds contributing authors: Stephen R Dager, Annette M Estes, Benjamin Wilfond, Katherine E MacDuffie Bioethics and Palliative Care - Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening (PMID: 39140259). Genetics in Medicine : Official Journal of The American College of Medical Genetics,.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening (PMID: 39140259). Genetics in medicine.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions (PMID: 39097243 ). J Pain Symptom Manage.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions (PMID: 39097243). Journal of Pain and Symptom Management.
UW Peds contributing authors: Jori F Bogetz, Kelly Shipman , Arika Patneaude , Abby R Rosenberg Bioethics and Palliative Care - Conducting inclusive research in genetics for transgender, gender-diverse, and sex-diverse individuals: Case analyses and recommendations from a clinical genomics study. (PMID: 37667436). Journal of Genetic Counseling, .
UW Peds contributing authors: Stephanie A Kraft, Lucas T Harrington Bioethics and Palliative Care
July 2024
- Autistic and autism community perspectives on infant and family support in the first two years of life: Findings from a community consultation survey (PMID: 39080987). Autism : the international journal of research and practice,.
UW Peds contributing authors: Katherine E MacDuffie, Lucas T Harrington Bioethics and Palliative Care - Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit (PMID: 38546796). Journal of palliative medicine.
UW Peds contributing authors: Jori Bogetz , Ellie Oslin, Krysta S Barton, Amy Trowbridge, Joyce Yi-Frazier, R Scott Watson Bioethics and Palliative Care Critical Care Medicine - Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit (PMID: 38546796). Journal of palliative medicine,.
UW Peds contributing authors: Jori Bogetz, Ellie Oslin, Krysta S Barton, Amy Trowbridge, Abby R Rosenberg Bioethics and Palliative Care - Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit (PMID: 38546796 ). J Palliat Med ..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Genetic research within Indigenous communities: Engagement opportunities and pathways forward (PMID: 38699966). Genetics in medicine : official journal of the American College of Medical Genetics.
UW Peds contributing authors: Krysta S Barton, Kathryn M Porter Bioethics and Palliative Care - Shared Decision-Making About Returning to Sport After Recovery From Pediatric Concussion: Clinician Perspectives (PMID: 39037366). Clinical journal of sport medicine : official journal of the Canadian Academy of Sport Medicine.
UW Peds contributing authors: Emily Kroshus-Havril, Douglas J Opel, Thomas M Jinguji, Mary Kathleen Steiner, Kirsten Senturia , Celeste Quitiquit, Monique S Burton , Brian J Krabak, Jeanette P Kotch, Frederick P Rivara Bioethics and Palliative Care - Shared Decision-Making About Returning to Sport After Recovery From Pediatric Concussion: Clinician Perspectives (PMID: 39037366 ). Clin J Sport Med.
UW Peds contributing authors: Emily Kroshus-Havril, Douglas J Opel, Thomas M Jinguji, Mary Kathleen Steiner, Kirsten Senturia, Monique S Burton, Celeste Quitiquit, Brian J Krabak, Jeanette P Kotch, Frederick P Rivara Bioethics and Palliative Care - Evaluation of mailed results versus telephone disclosure of normal cancer genetic test results in a low-risk underserved population (PMID: 10.1093/tbm/ibad084). Translational Behavioral Medicine.
UW Peds contributing authors: Ben Wilfond Bioethics and Palliative Care - Perspectives of pediatric oncologists on referral for CAR-T therapy: a mixed methods pilot study (PMID: 39078720 ). JNCI Cancer Spectrum.
UW Peds contributing authors: Anurekha G Hall, Devan M Duenas, Adam J Lamble, Elizabeth Gruber, Benjamin Wilfond Bioethics and Palliative Care Hematology, Oncology, Bone Marrow Transplant, and Cellular Therapy - Perspectives of pediatric oncologists on referral for CAR-T therapy: a mixed methods pilot study (PMID: 39078720). JNCI Cancer Spectrum.
UW Peds contributing authors: Benjamin Wilfond, Devan M Duenas Bioethics and Palliative Care
June 2024
- A call to action: An urgent need for national efforts to expand access to pediatric home healthcare. (PMID: 38869183). Pediatr Pulmonol.
UW Peds contributing authors: Holly Hòa Võ Bioethics and Palliative Care - In Response to, "Preferences for potential benefits and risks for gene therapy in the treatment of sickle cell disease". Blood Advances.
UW Peds contributing authors: Ben Wilfond Bioethics and Palliative Care - In Response to, "Preferences for potential benefits and risks for gene therapy in the treatment of sickle cell disease" (PMID: 38865716). Blood advances.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care