Bioethics And Palliative Care Publications
The listings below highlight research and contributions by UW Pediatrics faculty. These listings are not intended as a citation but rather a call-out of UW Pediatrics contributions. For official authorship please click the publication link provided.
December 2024
- Candidacy Decisions for Long-term Ventilation (PMID: 39501761). Pediatrics.
UW Peds contributing authors: Holly Hoa Vo , Benjamin S Wilfond, Georgina Campelia Bioethics and Palliative Care
November 2024
- Ethical considerations for sharing aggregate results from pragmatic clinical trials (PMID: 39587730). Clinical trials.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - The Conflation of All Suffering (PMID: 39565247). The Conflation of All Suffering. The American journal of bioethics : AJOB.
UW Peds contributing authors: Denise M Dudzinski Bioethics and Palliative Care - The four horsemen of clinical language (PMID: 39560027). Acta Paediatrica.
UW Peds contributing authors: Jennifer Cobelli Kett , Luke Mosley, Aaron Wightman Bioethics and Palliative Care - Examining Permanent Contraception for Children, Adolescents, and Young Adults With Intellectual Developmental Disorder: Ethical, Legal, and Medical Considerations: Clinical Report (PMID: 39428999). Pediatrics.
UW Peds contributing authors: Douglas Diekema Bioethics and Palliative Care
October 2024
- Early Intervention services in the era of genomic medicine: setting a research agenda (PMID: 39438712). Pediatric Research.
UW Peds contributing authors: Katherine E MacDuffie , Betty Cohn, Aaron J Goldenberg , Dan Doherty, Joon-Ho Yu Bioethics and Palliative Care Developmental Medicine Genetic Medicine - Word Choice and the Patient Encounter (PMID: 39292478). JAMA.
UW Peds contributing authors: Douglas J Opel Bioethics and Palliative Care - Eligible Infants Included in Neonatal Clinical Trials and Reasons for Noninclusion: A Systematic Review (PMID: 39453652). JAMA Netw Open ..
UW Peds contributing authors: Henna Shaikh, Ellie Oslin, Megan M Gray , Elliott Mark Weiss Bioethics and Palliative Care
August 2024
- Esophageal Bronchus-the Hidden Link. A Case Report (PMID: 39212333). A A Pract.
UW Peds contributing authors: Fiona M Patrao , Amanda L Valdez,, Siri Kanmanthreddy,, Katherine R Gentry,, Michael J Collins Bioethics and Palliative Care - Climate change is drying out canopy plants-that could mean less water for the entire rainforest. (PMID: 39167599). Proc Natl Acad Sci USA.
UW Peds contributing authors: Amy McDermott Bioethics and Palliative Care - Pediatric Neuropalliative Medicine (PMID: 39187254). Seminars in Neurology.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - "I'm completely off base here on what this child is capable of": A qualitative analysis of how medical ableism manifests in PICU clinicians' care of children with severe neurological impairment (PMID: 39191572). Disabil Health J..
UW Peds contributing authors: Ellie Oslin, Roberto E Montenegro, Stephanie A Kraft , Alisa Van Cleave , Jori Bogetz Bioethics and Palliative Care - Staffing crisis capacity: a different approach to healthcare resource allocation for a different type of scarce resource (PMID: 35777960). J Med Ethics.
UW Peds contributing authors: Catherine R Butler , Douglas S Diekema Bioethics and Palliative Care - Staffing crisis capacity: a different approach to healthcare resource allocation for a different type of scarce resource (PMID: 35777960). Journal of Medical Ethics.
UW Peds contributing authors: Douglas S Diekema Bioethics and Palliative Care - Parent attitudes towards predictive testing for autism in the first year of life (PMID: 39154179). Journal of Neurodevelopmental Disorders.
UW Peds contributing authors: Benjamin Wilfond, Stephen R Dager, Annette M Estes, Katherine E MacDuffie Bioethics and Palliative Care - Parent attitudes towards predictive testing for autism in the first year of life (PMID: 39154179). J Neurodev Disord . .
UW Peds contributing authors: Stephen R Dager, Annette M Estes, Benjamin Wilfond, Katherine E MacDuffie Bioethics and Palliative Care - Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening (PMID: 39140259). Genetics in medicine.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening (PMID: 39140259). Genetics in Medicine : Official Journal of The American College of Medical Genetics,.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions (PMID: 39097243 ). J Pain Symptom Manage.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions (PMID: 39097243). Journal of Pain and Symptom Management.
UW Peds contributing authors: Jori F Bogetz, Kelly Shipman , Arika Patneaude , Abby R Rosenberg Bioethics and Palliative Care - Conducting inclusive research in genetics for transgender, gender-diverse, and sex-diverse individuals: Case analyses and recommendations from a clinical genomics study. (PMID: 37667436). Journal of Genetic Counseling, .
UW Peds contributing authors: Stephanie A Kraft, Lucas T Harrington Bioethics and Palliative Care
July 2024
- Autistic and autism community perspectives on infant and family support in the first two years of life: Findings from a community consultation survey (PMID: 39080987). Autism : the international journal of research and practice,.
UW Peds contributing authors: Katherine E MacDuffie, Lucas T Harrington Bioethics and Palliative Care - Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit (PMID: 38546796). Journal of palliative medicine.
UW Peds contributing authors: Jori Bogetz , Ellie Oslin, Krysta S Barton, Amy Trowbridge, Joyce Yi-Frazier, R Scott Watson Bioethics and Palliative Care Critical Care Medicine - Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit (PMID: 38546796). Journal of palliative medicine,.
UW Peds contributing authors: Jori Bogetz, Ellie Oslin, Krysta S Barton, Amy Trowbridge, Abby R Rosenberg Bioethics and Palliative Care - Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit (PMID: 38546796 ). J Palliat Med ..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care