Bioethics And Palliative Care Publications
The listings below highlight research and contributions by UW Pediatrics faculty. These listings are not intended as a citation but rather a call-out of UW Pediatrics contributions. For official authorship please click the publication link provided.
June 2025
- Safe Enough: Subjective Determinations in Hospital Discharge for Patients With Medical Complexity (PMID: 40355131). Pediatrics . .
UW Peds contributing authors: Holly Hoa Vo Bioethics and Palliative Care
May 2025
- Towards better enrollment decision-making for perinatal clinical research: Reconsidering recruitment and consent processes to support family values and preferences. Seminars in Perinatology.
UW Peds contributing authors: Elliott Weiss, Benjamin Wilfond Bioethics and Palliative Care Neonatology - Medical, Societal, and Ethical Considerations for Directed Blood Donation in 2025 (PMID: 40354666). Ann Intern Med . .
UW Peds contributing authors: Mithya Lewis-Newby Bioethics and Palliative Care - Parental Communication with their Children about Cancer Risk and DTC Cascade Genetic Testing: Implications for Genetic Education and Counseling (PMID: 40357860). Am J Med Genet A . .
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Caregivers of Children With Medical Complexity: A Qualitative Study of Their Adaptation. (PMID: 40288781). Hosp Pediatr..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
April 2025
- Uncertainties in the NICU: a scoping review to inform a tailored taxonomy. Journal of Perinatology.
UW Peds contributing authors: Elliott Weiss Bioethics and Palliative Care Neonatology - Institutional Access to Gene Therapy for Sickle Cell Disease - Treatment on a Clinical Trial or Receive a Newly Approved Therapy? (PMID: 40192672). Am J Bioeth.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Towards better enrollment decision-making for perinatal clinical research: Reconsidering recruitment and consent processes to support family values and preferences (PMID: 40404236). Semin Perinatol.
UW Peds contributing authors: Elliott Mark Weiss , Benjamin Wilfond Bioethics and Palliative Care - Tiered Clinician Vaccine Communication Strategy to Improve Childhood Vaccine Uptake: A Cluster Randomized Clinical Trial (PMID: 40305020 ). JAMA Netw Open.
UW Peds contributing authors: Douglas J Opel , Chuan Zhou Bioethics and Palliative Care General Pediatrics
March 2025
- Pediatric Transplant Surgeons' Perspectives on Palliative Care for Children With Chronic Kidney Disease: A National Cross-Sectional Survey (PMID: 39873397). Pediatric Transplant.
UW Peds contributing authors: Aaron Wightman , Jodi Smith Bioethics and Palliative Care - Serotonergic Psychedelics Rapidly Modulate Evoked Glutamate Release in Cultured Cortical Neurons (PMID: 40022486). J Neurochem.
UW Peds contributing authors: Elliott Mark Weiss, Amy Trowbridge Bioethics and Palliative Care - Research Priorities in Neuropalliative Care: A Consensus Statement From the International Neuropalliative Care Society (PMID: 39899319). JAMA Neurol.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
February 2025
- Pediatric DTC Genetic Testing for Adult-Onset Inherited Cancer Risk: The Perspectives of High-Risk Parents. (PMID: 39908008 ). Public Health Genomics.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - No Vaccine, No Organ? Ethics of Vaccine Mandates for Pediatric Transplant (PMID: 39776025). Pediatric Transplant.
UW Peds contributing authors: Aaron Wightman, Elliott M Weiss Bioethics and Palliative Care - SeqFirst: Building equity access to a precise genetic diagnosis in critically ill newborns (PMID: 39999847). Am J Hum Genet ..
UW Peds contributing authors: Tara L Wenger, Alexandra Keefe, Kati J Buckinham, Colby T Marvin, Kathryn M Shively, Tamara Bacus, Olivia M Sommerland, Kailyn Anderson, Heidi Gildersleeve, Chayna J Davis, Katherine E MacDuffie, Danny E Miller, Joon-Ho Yu, Daniel A Doherty, Katrina Dipple, Jessica X Chong, Michael J Bamshad Bioethics and Palliative Care Genetic Medicine Neonatology - How will developmental neuroimaging contribute to the prediction of neurodevelopmental or psychiatric disorders? Challenges and opportunities (PMID: 39626161 ). JCO precision oncology.
UW Peds contributing authors: Brittany L Greene, Aaron G Wightman Bioethics and Palliative Care - Responding to ethical dilemmas in pediatric nephrology: a framework for clinicians in varied practice settings (PMID: 39966138). Pediatr Nephrology.
UW Peds contributing authors: Aaron Wightman Bioethics and Palliative Care - Test of Rapamycin in Aging Dogs (TRIAD): study design and rationale for a prospective, parallel-group, double-masked, randomized, placebo-controlled, multicenter trial of rapamycin in healthy middle-aged dogs from the Dog Aging Project (PMID: 39951177). Geroscience.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Saving Shared Decision-Making (PMID: 39953310 ). J Gen Intern Med.
UW Peds contributing authors: Douglas J Opel, Ellie Oslin Bioethics and Palliative Care - An intervention in the pediatric cardiac ICU to standardize pre-family meeting huddles is feasible, acceptable, and improves clinician teamwork (PMID: 39915960). Cardiol Young.
UW Peds contributing authors: Amy Trowbridge Bioethics and Palliative Care - Perspectives of Hispanic and Latinx Community Members on AI-Enabled mHealth Tools: Qualitative Focus Group Study (PMID: 39912577). J Med Internet Res.
UW Peds contributing authors: Benjamin S Wilfond, Margaret Rosenfeld Bioethics and Palliative Care
January 2025
- "I'm completely off base here on what this child is capable of": A qualitative analysis of how medical ableism manifests in PICU clinicians' care of children with severe neurological impairment. (PMID: 39191572 ). Disability and Health Journal .
UW Peds contributing authors: Roberto E Montenegro , Stephanie A Kraft, Alisa Van Cleave , Jori Bogetz Bioethics and Palliative Care
December 2024
- Can Open Science Advance Health Justice? Genomic Research Dissemination in the Evolving Data-Sharing Landscape (PMID: 39707953). The Hastings Center Report.
UW Peds contributing authors: Stephanie A Kraft Bioethics and Palliative Care - A Photo-Narrative Intervention for Children With Severe Neurological Impairment in the PICU (PMID: 39675393). Journal of pain and symptom management.
UW Peds contributing authors: Jori F Bogetz, Ellie Oslin, Amy Trowbridge Bioethics and Palliative Care - How will developmental neuroimaging contribute to the prediction of neurodevelopmental or psychiatric disorders? Challenges and opportunities (PMID: 39700912). Developmental Cognitive Neuroscience.
UW Peds contributing authors: Katherine E MacDuffie Bioethics and Palliative Care