Bioethics And Palliative Care Publications
The listings below highlight research and contributions by UW Pediatrics faculty. These listings are not intended as a citation but rather a call-out of UW Pediatrics contributions. For official authorship please click the publication link provided.
August 2025
- Normothermic Regional Perfusion in Pediatric Organ Recovery-Guidelines for Its Ethical Implementation (PMID: 40445903). Pediatr Transplant . .
UW Peds contributing authors: Emily Berkman, Jonna Clark, Denise Marie Dudzinski Bioethics and Palliative Care
July 2025
- A Qualitative Study of CMC Caregivers' Perspectives about their Emotional Well-Being (PMID: 40187377). J Pain Symptom Manage. .
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
June 2025
- Improving Access to Technology-Driven Critical Care Interventions in Children With Severe Neurological Impairment (PMID: 40476840). Pediatr Crit Care Med.
UW Peds contributing authors: Jori F Bogetz , Aaron Wightman Bioethics and Palliative Care - Uncertainties in the NICU: a scoping review to inform a tailored taxonomy (PMID: 40240841). Journal of perinatology.
UW Peds contributing authors: Elliott Mark Weiss Bioethics and Palliative Care - Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care (PMID: PMC12065655). J Pain Symptom Manage.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care (PMID: 40081622 ). J Pain Symptom Manage ..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
May 2025
- Caregivers of Children With Medical Complexity: A Qualitative Study of Their Adaptation. (PMID: 40288781). Hosp Pediatr..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
April 2025
- Tiered Clinician Vaccine Communication Strategy to Improve Childhood Vaccine Uptake: A Cluster Randomized Clinical Trial (PMID: 40305020 ). JAMA Netw Open.
UW Peds contributing authors: Douglas J Opel , Chuan Zhou Bioethics and Palliative Care General Pediatrics - Institutional Access to Gene Therapy for Sickle Cell Disease - Treatment on a Clinical Trial or Receive a Newly Approved Therapy? (PMID: 40192672). Am J Bioeth.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care
March 2025
- Pediatric Transplant Surgeons' Perspectives on Palliative Care for Children With Chronic Kidney Disease: A National Cross-Sectional Survey (PMID: 39873397). Pediatric Transplant.
UW Peds contributing authors: Aaron Wightman , Jodi Smith Bioethics and Palliative Care - Serotonergic Psychedelics Rapidly Modulate Evoked Glutamate Release in Cultured Cortical Neurons (PMID: 40022486). J Neurochem.
UW Peds contributing authors: Elliott Mark Weiss, Amy Trowbridge Bioethics and Palliative Care - Research Priorities in Neuropalliative Care: A Consensus Statement From the International Neuropalliative Care Society (PMID: 39899319). JAMA Neurol.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
February 2025
- No Vaccine, No Organ? Ethics of Vaccine Mandates for Pediatric Transplant (PMID: 39776025). Pediatric Transplant.
UW Peds contributing authors: Aaron Wightman, Elliott M Weiss Bioethics and Palliative Care - Pediatric DTC Genetic Testing for Adult-Onset Inherited Cancer Risk: The Perspectives of High-Risk Parents. (PMID: 39908008 ). Public Health Genomics.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - SeqFirst: Building equity access to a precise genetic diagnosis in critically ill newborns (PMID: 39999847). Am J Hum Genet ..
UW Peds contributing authors: Tara L Wenger, Alexandra Keefe, Kati J Buckinham, Colby T Marvin, Kathryn M Shively, Tamara Bacus, Olivia M Sommerland, Kailyn Anderson, Heidi Gildersleeve, Chayna J Davis, Katherine E MacDuffie, Danny E Miller, Joon-Ho Yu, Daniel A Doherty, Katrina Dipple, Jessica X Chong, Michael J Bamshad Bioethics and Palliative Care Genetic Medicine Neonatology - How will developmental neuroimaging contribute to the prediction of neurodevelopmental or psychiatric disorders? Challenges and opportunities (PMID: 39626161 ). JCO precision oncology.
UW Peds contributing authors: Brittany L Greene, Aaron G Wightman Bioethics and Palliative Care - Responding to ethical dilemmas in pediatric nephrology: a framework for clinicians in varied practice settings (PMID: 39966138). Pediatr Nephrology.
UW Peds contributing authors: Aaron Wightman Bioethics and Palliative Care - Saving Shared Decision-Making (PMID: 39953310 ). J Gen Intern Med.
UW Peds contributing authors: Douglas J Opel, Ellie Oslin Bioethics and Palliative Care - Test of Rapamycin in Aging Dogs (TRIAD): study design and rationale for a prospective, parallel-group, double-masked, randomized, placebo-controlled, multicenter trial of rapamycin in healthy middle-aged dogs from the Dog Aging Project (PMID: 39951177). Geroscience.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - An intervention in the pediatric cardiac ICU to standardize pre-family meeting huddles is feasible, acceptable, and improves clinician teamwork (PMID: 39915960). Cardiol Young.
UW Peds contributing authors: Amy Trowbridge Bioethics and Palliative Care - Perspectives of Hispanic and Latinx Community Members on AI-Enabled mHealth Tools: Qualitative Focus Group Study (PMID: 39912577). J Med Internet Res.
UW Peds contributing authors: Benjamin S Wilfond, Margaret Rosenfeld Bioethics and Palliative Care
January 2025
- "I'm completely off base here on what this child is capable of": A qualitative analysis of how medical ableism manifests in PICU clinicians' care of children with severe neurological impairment. (PMID: 39191572 ). Disability and Health Journal .
UW Peds contributing authors: Roberto E Montenegro , Stephanie A Kraft, Alisa Van Cleave , Jori Bogetz Bioethics and Palliative Care
December 2024
- Can Open Science Advance Health Justice? Genomic Research Dissemination in the Evolving Data-Sharing Landscape (PMID: 39707953). The Hastings Center Report.
UW Peds contributing authors: Stephanie A Kraft Bioethics and Palliative Care - A Photo-Narrative Intervention for Children With Severe Neurological Impairment in the PICU (PMID: 39675393). Journal of pain and symptom management.
UW Peds contributing authors: Jori F Bogetz, Ellie Oslin, Amy Trowbridge Bioethics and Palliative Care - How will developmental neuroimaging contribute to the prediction of neurodevelopmental or psychiatric disorders? Challenges and opportunities (PMID: 39700912). Developmental Cognitive Neuroscience.
UW Peds contributing authors: Katherine E MacDuffie Bioethics and Palliative Care